The Louis Capano Family Foundation (LCFF) has announced Exceptional Care for Children (ECC) as the beneficiary of its 2019 annual Golf Outing fundraiser event. As Delaware’s first and only pediatric skilled nursing facility, ECC improves the lives of technology-dependent children and their families through skilled nursing, transitional services, and palliative care in the homelike setting of their Newark facility.
“The skill and dedication of the ECC staff is extraordinary,” said LCFF President and Capano Management CEO Louis Capano III. “We are proud the tournament will help support one of the few facilities in the nation striving to give their young residents as normal a life as possible despite their medical challenges.”
Building A Healthcare Bridge
13-year-old Mattie is one of 41 medically fragile children living a happy and healthy childhood because of the existence of Exceptional Care for Children, located in Newark. He has called ECC home for the majority of his life due to an extremely complicated medical background with a life threatening diagnosis. He requires an artificial airway and a ventilator to control his breathing, and because he doesn’t eat by mouth, a feeding tube has been placed in his stomach.
Not long ago, children like Mattie probably would not have survived. They were too sick to be treated at home, and hospitals didn’t have the advanced medical technology necessary to help them thrive. Residential pediatric care, like ECC, helped change that. Now, they are working toward another healthcare bridge.
Like Mattie, children with chronic issues can end up residing at ECC on a long-term basis. Currently, residents must transition out of ECC prior to their 21st birthday. To fill that healthcare age gap, ECC has launched a capital campaign with the goal of building additional living and medical services quarters to house residents as they grow into adulthood.
“Over the past 13 years, ECC has devoted itself to Delaware’s most fragile citizens,” said Shannon McLaughlin Abel, Director of External Affairs & Development.“This generous announcement by the Louis Capano Family Foundation is a big step toward our goal of constructing a contiguous building with a Bridge Unit. This would allow our young residents to continue receiving award winning and innovative healthcare into age 21 and possibly beyond.”
“We first heard about ECC through our work with the Mary Campbell Center, who also offer a similar homelike environment but for adults with disabilities, said Capano. “The stories of these children, some as young as infants, and the medical trials they must overcome daily is truly inspiring. It’s an honor to play any part in their continued development.”
The Louis Capano Family Foundation was established in 2007 with the charge of supporting child- and healthcare-relative initiatives that bring hope and happiness to the children, youth and families of the Delaware community. The Foundation’s signature fundraising event is the annual LCFF Golf Outing. To date, this tournament has donated more than $1 million to local charities. In addition, the LCFF together with other Capano entities have given over $3 million to charity through donations, sponsorships, partnerships and grants.